Tumefactive MS (multiple sclerosis)

In our hospital we deal with a lot of WEIRD/uncommon diseases. One of the weird ones I've encountered is tumefactive MS. I hadn't ever heard of this and I had to do some research on this. I also spoke with one of our neurologists. Especially considering my aunt has MS and when they started treatment for my patient, it was completely different than the normal.

I'll give you some background cuz how this pt came to us is unusual.... the pt is a new mom, still a teenager (therefore should have gone to paediatrics, but didn't) and when she was brought to the hospital it was because her family thought she had post partum depression (PPD).... she was sleeping like 20 hrs a day and had stopped taking care of herself and her baby. The crazy thing is that she had been like this for 2+ WEEKS before they brought her to the hospital!!! Her BF admitted that he had been oblivious to what was going on with her and the only reason they brought her to the hospital was because she had gone crazy on her BF's head when he tried to push her into having a shower.

Now, I will at least give the physician's at our hospital a kudos because when they received her, they gave her a head CT - but after they put her on a form 1 (involuntary psych hold for 72 hrs for assessment) and gave her the diagnosis of "psychosis" - which even after a definitive diagnosis still follows her throughout her stay at the hospital, and IMO is ridiculous!

When they did the CT scan they found FIVE lesions on her brain - HOLY CRAZY BAT MAN!!! Because of this all he brain was swollen and put all together caused a massive decrease in her LOC and mental capabilities.

When she came to our unit, I asked her our person, place, and time questions but made it more personal, this is how it went...

me: "can you tell me what month we're in..."
her: "it's June"
my thoughts - ok we're only off by 4 months LOL
me: "ok, what day is it..."
her: "the 27th"
my thoughts - yep we sure are off like 3 weeks!
me: "well then, what year are we in..."
her: "1994"
me.... trying VERY hard not to giggle at her.... we're only off like 18 yrs....

I looked at her mom and said, "isn't that her birthday?" Ya sure is....

When I asked her about what gender her baby was, she told me that she had had a boy

that's when I knew she was in deep trouble because there isn't ANY mother that would screw up the gender of their child unless there's something major going on!

When they started treatment for her, they started her on solu medrol (aka prednisone - aka steroid)but no meds that decrease the demyelinization that occurs with MS... that's when I asked the neurologist why they did this....

I guess the difference between regular MS and this kind is that it's a fast acting MS and causes lesions to occur in the brain and therefore the solumedrol will decrease this.... the freakiness of this condition is that it attacks fast and mimics a lot of other neuro conditions and is often mis diagnosed as a brain tumor which is dealt with differently and could lead to the patient's demise.

Even 4 days on a high level of this steroid there wasn't much change in her neurological status until they doubled the dose... now she's a spit fire and soon will need to have rehab to try to gain what this condition has robbed her of. Patient's like these make me wish that I could follow them along because it's soooo interesting.

Trying to recover

I've been home for a day now and while it's nice to be home, it's exactly what I thought it would be like... where the family thinks that just because I'm no longer in the hospital, it equals not sick, thereby all better.

I will make it crystal clear that that is NOT how things are! I'm dizzy all the time, which in turn makes me nauseous. It really sucks, and knocks me on my butt when it happens. I get all diaphoretic and feel like I could just pass out and fall on my head.

Last week my MIL got hurt at work - something fell on her and it hurt her back and neck. Now, I'm not one to say that you aren't in pain since pain is subjective - we all deal with it in our own way. But today she had the nerve to tell me that because she manages to do things around the house and she's "sick", then by that logic, so should I be. WTH!!!! It's like comparing apples to oranges...

I honestly feel like I shouldn't be at home right now - I don't feel well. I feel like I'm going through withdrawls or something. I don't know if this is a SE of the prednisone since I've never been on it before but I know that I'm certainly not well enough to go back to work and therefore not well enough to do work around this house - not enough that anyone around here would take notice of anyways.

I really wish hubby had a job in his field so that we could move out - I'm absolutely fed up of the treatment that I receive living here. UGH!!!!

I need to get better quick so that I can go back to work so that I can save some money so that I can finish school faster and get a house of my own!!!!!!!!

Discharge papers received

So by the power received by the doctor in my hospital, I have been told to go home... tomorrow that is. Dizziness in crazy intensity is occuring - new symptom for me... but Dr doesn't really care.

I'm being put on prednisone to hopefully help alleviate or cure the symptoms I'm experiencing. The Dr consulted the neurologist on what to do for me - I think I've stumped them with what's going on with me. Hell, I'm stumped so why shouldn't they be?!

I'm not exactly looking forward to going home - I don't quite feel ready for it. My body feels "off" and still not back to normal and therefore I don't feel ready to leave here. Especially to take care of little tyke.

I had my first shower in like 5 days, I know ewwww gross right.... well I assure you, if I could stand upright for longer than a bathroom pee break, I would be having one!!! Almost fell over today when I was heading back to my room I was sooooo dizzy. But hey, that doesn't seem to matter to anyone until I actually FALL. Ridiculous really. Felt good to have a shower, at least I look like a proper human being now, and I don't stink at least (not that I did before, thank goodness for the invention of anti perspirant and toothpaste!).

The ONLY thing I'm looking forward to is that I can see my family - my hubby and my baby girl. Even though my little tyke is a handful (being almost 3 will do that!), I miss her dearly and love her to bits and pieces. Hubby seems to have actually missed my absence. Tho I suppose when the caregiver of the little one leaves, that makes more responsibility for him right?! So I don't really blame him for missing me :P Even tho I say that, I know that he misses me because he loves me - as I love him. He's my rock... just wish he would have spent more time with me while I've been in hospital - I've been really lonely considering he's spent VERY little time being with me. A couple of dinners here and there is about all. It hurts my feelings but what can I do? And I know that one might say that he has the responsibility of taking care of little tyke... well considering we live with his family, that's not necessarily a requirement since he can ask them to watch her while he comes to me. He has brought her with him a couple of times - I know that little tyke certainly misses me. When she's seen me, I still had the IV and so she was quite apprehensive about touching me cause I had a "boo boo".... VERY sweet and VERY innocent.

I also miss my own bed - tho I do like the electric aspect to the hospital bed - quite convenient at times!!! Certainly makes one more lazy when getting out of bed!

Long story short - I leave tomorrow AM, I'll know more about follow up then. I know that the Dr is giving me at least til Tuesday to recuperate and should I need more time then I have to see my family Dr. I guess that will have to do, it's not like they're giving me another choice in the matter!